Tuesday, December 16, 2014

Journey For The Boy

I know I may have alluded to this in the past, but the boy has some genuine characteristics of Aspergers. Spoke with his doctor since it has been difficult the past year or 2, and she referred us to a neurologist, who pretty much said that he is our little aspie boy! 

Tomorrow we start the official testing, or rather, the intake process for the testing. His first actual testing date is Dec 31, and then several of the following Wednesdays after that, until results at the end of January. As with myself, I'm rather certain that he is definitely my little aspie boy. I've known since birth really. But I need more tools to help him to be less anxious and more at peace, and get his going to bed under control. Something happened when he turned 6, and he stopped falling right to sleep! So strange, as he slept so well up until then. Oh well, getting older. 

So, here we go. Mostly, I just want probably what all parents want, for my kid to be happy, and for us to have the tools to work with the times that aren't so happy, and help him through that stuff, and set him up to be able to get through those times as an adult.

Thursday, December 4, 2014

Autism & Genius

I fully believe each person, ASD or not, was put on the earth with their own unique gifts and talents. However, I have found it extremely interesting the intense talents that people with ASD can have. 

There of course is no way of knowing, but taking information about people who have lived in the past, we can piece together some pretty good pictures of people who may have qualified as autistic. It is very interesting how many of the famous people thought of as having ASD were brilliant at their craft. Beethoven. Einstein. Jefferson. 

But it makes sense doesn't it? 
ASD usually comes with a high level of social impairment.

Most NT people are highly concerned with social involvement. Now think about how much time that socializing takes up for most NT people. 

Now think about how much less time socializing takes up for an ASD person. It's naturally going to be less right? Probably much less. 

And with all that extra time on their hands, these people with these brains that are just wired differently, they just have all this spare time on their hands. And these are not bored people! They make all sorts of fun with their spare time.

Who else would be as laser focused on creating something besides an ASD person? No social interests, just pure focus on their craft. Their ability to be totally obsessed with certain topics obviously has a lot to do with which skill they have, and obviously with all kinds of time on their hands to work with their favorite topic, all  sorts of thoughts and fascinations can come up!

I'm fascinated by this idea. As someone with ASD, I have hopes that I too have some gift that is unique and special. Even if I don't even know what it is, I do know that somehow my gift is important and useful. This is true of NT people too of course, again we all have our gifts. But I fully believe that ASD people are not a mistake, we have the characteristics that we have for a reason, and we have a lot of spare time not spent socializing to work on it. :) Ha!

Tuesday, December 2, 2014

More On Females and ASD

I thought I would write a bit on this gender discrepancy involved in diagnosis of ASD. It is most commonly known or seen in boys, but that doesn't mean that girls don't have ASD. A lot of people seem to think that because less girls are diagnosed, that must mean that for some reason boys are more likely to have ASD compared to girls. This is becoming less true all the time. Girls do get ASD, so it isn't solely a male issue, and a lot of the girls who have ASD don't look like the boys who have it. It is a spectrum, after all, but yet girls seem to have their own set of struggles and symptoms, and especially are less likely to be diagnosed in the first place because they are less likely to act out or have obvious struggles or symptoms.

This is especially true in the upper ranges of functioning, like Aspergers. Aspergers is more known for its social difficulties, but you have to remember when we are comparing ASD males with ASD females, the same truths are going to apply to them as to NT males and females. If you were to think about which were more social creatures, most people would say that females are more social. This isn't true in every case, but generally, the stereotype is that women are the chatty ones. So when we compare ASD males vs females, that rule still applies; females are likely to be more social, but this doesn't come without struggle.

It is said most places that when females are on the spectrum, they learn to mimic others around them. I have found this to be personally true, right down to the accent or slang used. I quickly and easily start talking like others around me, although I am usually aware I am doing it and sometimes I consciously tell myself not to do it if I am in an uncomfortable situation. I also tell myself to get out of that way of speaking when I am no longer in that same social setting. 

I, and many other Aspie women, feel that ASD in females is highly undiagnosed. There are lots of ways that people can pass off the symptoms as "just being a girl". I found it very interesting when one writer put it "I believe that further investigation into this area would reveal that clinicians, teachers and even sometimes parents make allowances for certain behaviours demonstrated by girls, simply because they are girls" (This link) So basically, we are ignoring certain symptoms that are clearly ASD behaviors, simply because the person is a girl, and that must just be her "dramatic" girly behavior, or whatever. We excuse "fragile" girls from their obsessions with horses or dolls as "girly traits". Most ASD girls have obsessions just like males, but their obsessions are more "socially appropriate", and therefore no one thinks twice about a girl gathering and collecting things related to that obsession.

I also found this link very interesting as well, as it seems to show that rates of females are increasing faster than rates of boys, likely due to increased awareness and information. I believe this is showing that things are changing, and females on the spectrum are becoming identified based on their separate and unique presenting characteristics.

This will continue to change, I believe, due to increased female diagnosis, and as us vocal femaspies (I just made up that word haha!) as we spread the word about our feelings and lives and how we are affected by our ASD.

This and this are one of my favorite links about female ASD because it is written by a female aspie. :) She would know. Just like I would know!

Most of the ASD criteria applies to girls, but the perspective has to be changed. For example, as I (and as the writer of the last 2 posts) said, females present differently. That doesn't mean that ASD symptoms aren't there, it just means that those symptoms may be harder to see.

And as in yesterday's post, I fear that more females are punished for their autism behaviors than boys because they are more likely to go undiagnosed, or thought to not be able to have autism.

Monday, December 1, 2014

Journey....

My son had his doctor's appointment recently and we are starting the journey of testing him. I'm pretty confident that he is my incredible aspieboy. I have no fears or doubts about it. He is what he is, and has been since birth. I am amazed at the mechanical and engineering genius he could be someday. His brain works in ways that I can't even comprehend. And I've always known deep down. But it is getting to the point where we need some tools now to find out how to be better parents and for me to be a better teacher to him as well. 

The most frustrating thing is that I have Aspergers, so I "should" know how to help him. But he is different, so he needs different things too.
The benefit of the situation is that I have Aspergers. So I know most of what I'm dealing with.  But what about parents who don't, who have kids that do? I know there is a lot of denial out there because you don't want to have to face that your child has a significant struggle. Luckily these days for the most part kids aren't missed because the school system very quickly runs into problems and they usually get them addressed. Sometimes that is the first time the child shows any obvious problems. I suppose also that doctors will see and help with some of the more obvious ones before school age. My guess is that this happens quicker and more easily in kids who have obvious issues. But what if the kid just tends to be stubborn or annoying? What if they are just quirky? What if they are just peculiar? What if they are just their own person? Well, isn't everyone just their own person? That doesn't mean they are normal in all cases.

My biggest fear? That parents will try to punish the behaviors out of their children. I and so many other adults getting diagnosed these days are proof; you can't punish autism out of someone. It isn't bad behavior, it's brain functioning difference. And those brain differences are on purpose! This isn't a mistake!

However, it seems most parents these days would just view it as bad behavior, terrible twos, trying threes, pre-tween angst, typical teenager or whatever other child related negative title you want to give them. But no matter what you do, you will not retrain an autistic brain to not display certain behaviors. In fact, trying to do so can be harmful, just as it is agreed now that telling children to suck it up is harmful. Even if you succeed in forcing a child to bury their autistic behaviors, it is just going to show up somewhere else. 

I once read something about babies when my son was a baby. Fulfilled needs go away. Unfulfilled needs turn into undesirable habits. If someone is hungry, and you don't feed them, they will find a way to fill that need, even if that means eating paper. (Just an example). Feeding a hungry child makes the need go away (at least for that mealtime - haha!)

The brain causes different behaviors in autistics. Trying to force autistics to bury those differences will only show up as some undesirable habit somewhere along the line. You may succeed in burying whatever autistic behavior you don't like for the moment, but you're causing either you or the child to suffer with whatever the result of that is. I think it is better to support a person where they are at, rather than force them to be something they are not. 

I feel like this post is getting a little blabby and wordy, so I'll stop for now. But I wanted to pop in and post something, as I've been a little out of it lately. Thanks for following!


Friday, November 14, 2014

Challenging Myself & Being Disappointed (Warning: Parenthood Spoilers)

I'm a yelling mom.

I don't want to be. But I am.

So I'm taking a book club challenge from Orange Rhino. This is a mom who has her hands full. (One thing I've learned so far and not directly through the book club discussions is that my gut instinct is to say that shes much more overwhelmed than me, but I have to start learning to not make unfair comparisons of myself to others. Her struggles seem intense, but I also have struggles different from hers and they aren't any less difficult. We are equal, not in a competition to "out-struggle" each other.)

Anyway, I was frustrated on one chapter on tracking my triggers. Like a food journal, write down when I yell, why, and whatnot. First, I haven't found the attachment or when I mean to my computer wont cooperate. Second, I haven't even remembered when im yelling to stop and yell away, nor can I remember to write it down afterwards because I'm just trying to decompress from yelling.

I have remembered maybe twice to even stop and THINK about a particular yelling. Sadly, its hard to distinguish yelling from "nasty toned talk", so I'm really becoming aware of everything that's coming out of my mouth. So that's progress.

I was pouting and wondering why I can't get it together and write my triggers when another user's post caught my eye. CONTROL FREAK.

And yet another, who went on to say that its deeper than that, that it's a fear of being disappointed.

*MINDBLOWN*

Disappointment is NOT easy for those on the spectrum. Just last night watching Parenthood, Max was disappointed by a girl he had fallen in love with. I immediately connected because that kind of stuff happened to me a lot too. My intense affection for someone, the flashy ways I showed that, embarrassing stuff. I'm left wishing quite a few notes were dropped in a trash can without being read.

But Max was so disappointed when said girl liked someone else he absolutely lost it. Twice, I recall. It was heartbreaking and sad. This is really normal for spectrum. If something doesn't turn out the way they planned it and pictured it, it's as if someone took ahold of your brain and ripped it to pieces. It physically hurts. I would rather be overwhelmed and exhausted doing it all myself, or criticizing my kid for how he did it wrong, than to just accept that done is done even if it's not done by me or my way.

This is a great learning experience. I'm considering that for that reason alone I may need to revisit some counseling as I did before, and get more to the bottom of this kind of situation because the more I stew on it, the more situations I can see this interfering with, not just with today, or tomorrow, but into the future as well. This is something I'm not lying down on.

Moving forward.